The Transplant Registry is the central body in Germany that collects data on organ donations, transplantations, organ donors, and organ recipients.
For the first time, the Transplant Registry centrally collects transplant-related medical data from deceased organ donors, living donors, individuals on the waiting list, and organ recipients. These data are linked, quality-assured, and made available for scientific use.
In order to generate initial insights as quickly as possible, data without consent were retrospectively added to the registry for the period from 1 January 2006 to 31 December 2016 during its setup phase. Following this setup phase, regular operation of the Transplant Registry began in July 2021. Since December 2023, data for which consent of the affected individuals was necessary has been available for retrieval from the reporting year 2017 onwards.
Established by law in the Transplantation Act, the Transplant Registry aims to increase transparency and quality in transplantation medicine and to contribute to greater patient safety. In addition, it provides a scientific basis for the further development of the guidelines of the German Medical Association.
Through the central consolidation of relevant data, the Transplant Registry provides the basis for scientific analyses – with data from more than 80,000 transplantations and around 3,000 variables.
Since the start of regular operation in July 2021, data from the Transplant Registry can be requested for analysis by institutions defined in the Transplantation Act (TPG) as well as by research institutions. Information on data requests and the resulting publications is transparently available on this website.
This website also provides comprehensive information for potential and current data users who wish to learn more about the possibilities for accessing and using the data.
As a person on the waiting list, a transplant recipient, or a living donor, you have the right at any time to obtain information about the processing of your personal data. For such requests, you can contact the independent Trusted Third Party. The Trusted Third Party can establish a link between your personal data and the pseudonym stored in the Transplant Registry. This procedure serves to protect your data. The independent Trusted Third Party retrieves the information stored in pseudonymized form in the Transplant Registry and responds to your request.
Further information for affected individuals, as well as details on your rights and options, can be found in the section “Affected Individuals”.
Stefanie Binder-Popov
Project Officer and Press Contact
+49 341 98988 350
Dr. Svitlana Ziganshyna
Medical and Scientific Lead
+49 341 98988 350
